Amy Desmarais is an SEO Analyst living in the Boston, MA area. She was a member of the Board of Directors for the Hypersomnia Foundation from 2017 – 2020, which she became involved with after being diagnosed with idiopathic hypersomnia in 2015. As a Rising Voices trained speaker, Amy hopes to spread awareness of hypersomnia by sharing her story.
The Rising Voices Series features a variety of first-hand stories from people living with sleep disorders around the world. At Project Sleep, we believe in the power of storytelling to raise awareness and break down stigma. This is why we train people with sleep disorders on how to share their stories through the Rising Voices training program. To request a Rising Voices speaker for your conference or apply for an upcoming training program, visit: https://project-sleep.com/rising-voices/
Please note: this audio was originally recorded in 2020. For up-to-date facts about narcolepsy treatment options: https://project-sleep.com/facts-about-narcolepsy/
We’re joined by renowned narcolepsy expert, Dr. Thomas Scammell to answer all your questions about the science of narcolepsy. What causes narcolepsy? Is it...
Iris Vasconcelos is an avid advocate for invisible illnesses, freelance writer, and blogger from Portugal. She was diagnosed with narcolepsy at 28 years old...
Amanda Myers is a college student who splits her time between studying biology and competing in olympic weightlifting. At the age of 20, she...
