So you’d like to advocate for narcolepsy, but aren’t sure where to start? In this episode, we are joined by two incredible narcolepsy advocates, Ana E. Lara and Matthew Horsnell. Together, we talk about the power of YOUR story and break down narcolepsy advocacy into three categories: self-advocacy, raising your voice publicly, and legislative advocacy.
Ana E. Lara is a poet and stay-at-home mom who is passionate about writing. She is a person with narcolepsy, who advocates for sleep health and serves on the board of directors for Project Sleep.
Matthew Horsnell is a father of three and science nerd living with type 1 narcolepsy with cataplexy. He is a Rising Voices of Narcolepsy trained speaker and a facilitator for Wake Up Narcolepsy online small groups.
Download the Becoming a Narcolepsy Advocate Toolkit for more resources: https://bit.ly/becoming-a-narcolepsy-advocate
The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. https://project-sleep.com/narcolepsy-nerd-alert/
Ebony is a telecommunications engineer and identical twin from Leawood, KS, living with type 1 narcolepsy with cataplexy. As a trained speaker of Project...
Rachel Nesmith is a wife, mother, and speaker. She was diagnosed with type 1 narcolepsy with cataplexy in February 2002 and considers herself a...
With sleep paralysis and hypnagogic and hypnopompic hallucinations, the lines between sleeping and waking can be blurred. In this episode, we talk with three...
